Speak to your doctor
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If you have ‘fallen through the net’ and haven’t had your brain injury diagnosed, go back, speak to your doctor again. If you were given a diagnosis, but not referred to a specialist, such as a clinical neuropsychologist, go back, ask for an evaluation and a referral.
You must get a diagnosis as this is a vital first step in taking control back over your life. Once you have received this confirmation, there are specialist services that can help you regain your functional and social skills.
We understand that sometimes, insurance doesn’t cover the treatment required. However, it is paramount that if you can get the help that you follow it through.
A specialist will be able to help you to develop strategies to help compensate for memory problems and impairments in cognitive functioning. They should also give advice and support to your family as their needs are also changed, and information can help to support them as they learn to deal with your needs.
If your doctor has previously dismissed you, there is information you can take along that will help. You can find this printable document at the top of the page under the page title.
Alternatively, try to see a different doctor, or find one who has experience in brain injury. A local brain injury support group may be able to suggest doctors in your area.
There is a much better general understanding of ‘plasticity’ now, and there are doctors who are aware that medical treatments and therapies can help even years after the initial insult. It is worth speaking to your doctor about being referred to a neuropsychiatrist before embarking on any self-help programmes – including the following the information offered on this site.
Many people struggle with medical costs and issues with insurance companies, and this is very much part of the reason this site exists.
You may be invisible to the rest of the world, but this doesn’t mean that you are not understood and have to go without helpful information and support.
The most important thing to recognise is that every brain injury is unique. Having said this, the way people describe the consequences of brain injury can be very similar – whatever the cause.
Most people now recognise that what is happening to them may not be happening in the same way to someone else, but might be being experienced in similar ways. These shared experiences enable profound understanding and empathy – amongst everyone affected.